Philip F. Moss, Jr.

Vestavia Hills High School

Vestavia, Alabama

Despite facing a life-altering diagnosis of neurofibromatosis type 1 (NF1) at a young age, Philip Moss, Jr. has emerged as a shining example of resilience and community service. Battling a plexiform tumor since kindergarten, he navigated countless surgeries, medications, and limitations with unwavering positivity.

Driven by gratitude for organizations that supported him during his toughest times, Philip actively gives back. He volunteers with Magic Moments of Alabama, reliving the joy they brought him during his treatment, and passionately advocates for rare disease policies through the Everyday Life Foundation. As a Children’s Tumor Foundation spokesperson, he shares his experience as a successful clinical trial participant, highlighting the impact of research and development for rare diseases.

Philip’s journey wasn’t easy. Separated from sports due to his illness, he channeled his energy into academics and community service. He overcame his challenges with quiet determination and a passion to help others. Today, he proudly declares, “I have NF1, but NF1 doesn’t have me.” This powerful statement embodies his spirit – one of unwavering strength, resilience, and a commitment to #EndNF for future generations.

With his dedication to advocacy and service, Philip inspires countless others facing adversity. He is a testament to the human spirit’s ability to persevere and make a positive impact, even in the face of immense challenges. He is a voice for rare disease patients, a beacon of hope, and a true inspiration to us all.